FASD Hub

Take part in research!

Lived Experiences of Caregivers Supporting Children and Adolescents Prenatally Exposed to Alcohol: Silvia Juravic

My name is Silvia Juravic and I am a Masters student at the University of Glasgow studying Psychological Studies. I am inviting you to take part in a research study. The purpose of this study is to explore lived experiences of caregivers of children with FASD and PAE in accessing and receiving support since the launch of FASD Hub Scotland.


If you would like to participate in the study, you have had to received support through FASD Hub Scotland since its launch in 2019 and possibly have been through the process of getting a FASD diagnosis for your child. This research is supported by the FASD Hub Scotland and the results will be shared with them, so there is potential for this to be used when considering future improvements to their services.If you choose to take part in this study, I will arrange a time to host an online audio-only interview with you. Before the interview I will send you the interview questions as well as a few demographics questions that will only take 5 minutes to answer. During the interview I will ask you questions about your experience with FASD Hub Scotland as well as your satisfaction with support that is offered and your lived experiences in receiving interventions and support since the launch of the FASD Hub Scotland. This will take around 45 minutes to complete.


The anonymised results of this study will be written up as part of my MSc dissertation. The results may also be presented at academic conferences or in academic journals. The results will also be shared with FASD Hub Scotland.

I am aiming to hold interviews as soon as possible, ideally in the week commencing the 5th of June or otherwise sometime before the 16th of June. If you would like to participate please contact me with your full name, email address and a couple of preferred dates and times and I will send you a link and an ID number so that you can access the meeting.

Researcher: Silvia Juravic
Email: [email protected]


I look forward to hearing from you!
Kind regards,
Silvia

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‘Understanding the determinants of resilience in families affected by Fetal Alcohol Spectrum Disorder’

Hello, my name is Samantha Francis. 

I am a PhD student at the University of Strathclyde due to my own background of caring for children with disabilities this research project is of great importance to me and close to my heart.

This research aims to provide a deeper understanding of your day-to-day life, the challenges you face, how you overcome them, who if anyone supports you to do this, and what support you wish you had received. Your personal story when shared and combined with other families can help to build a picture of how resilience can be encouraged in other families affected by FASD. This picture can then be used to help inform decisions made by both policy makers and service providers to improve the support that is currently available.

Sam will shortly be recruiting for the next stage of her research - check back soon!

Experiences of young people with FASD: photos, thoughts and words from young people

FASD Hub Scotland is delighted to share the photos and views of young people from this research study by Miranda Eodanable into the lived experiences of young people with FASD. We think our young people are amazing - many thanks to all those who took part. 

Welcome to this photo-based study that displays the photos, thoughts and words of young people with FASD. 

My name is Miranda and I am studying at the University of Edinburgh. From May 2021 to May 2022, I have been privileged to carry out research with 8 young people across the UK as they share their views and experiences of FASD with me and as part of a group.  In this SWAY presentation, we have worked together to identify photos and the key messages that the young people want to share about FASD with everyone!

Thank you to my co-researchers and FASD Hub Scotland for supporting this research. Any questions please contact me at [email protected]

View the presentation here

If you are a student/researcher working in the field of FASD, we may be able to support your work. At times, members of our community may be available to participate in your research providing the lived experience that enriches research and ensuring that its outcomes meet the needs those with FASD and their families. 

If you would like FASD Hub Scotland to consider supporting you in your research, approval must be gained from the Adoption UK Senior Leadership Team. You are required to provide a written confirmation of ethics approval from your university, and also a research outline document. These will then be reviewed by Adoption UK and you will be informed of the outcome. Research requests should be emailed to [email protected]