FASD Hub

Research

Take part in research!

‘Understanding the determinants of resilience in families affected by Fetal Alcohol Spectrum Disorder’

Hello, my name is Samantha Francis.

I am a PhD student at the University of Strathclyde due to my own background of caring for children with disabilities this research project is of great importance to me and close to my heart.

This research aims to provide a deeper understanding of your day-to-day life, the challenges you face, how you overcome them, who if anyone supports you to do this, and what support you wish you had received. Your personal story when shared and combined with other families can help to build a picture of how resilience can be encouraged in other families affected by FASD. This picture can then be used to help inform decisions made by both policy makers and service providers to improve the support that is currently available.

Sam will shortly be recruiting for the next stage of her research - check back soon!

Experiences of young people with FASD: photos, thoughts and words from young people

FASD Hub Scotland is delighted to share the photos and views of young people from this research study by Miranda Eodanable into the lived experiences of young people with FASD. We think our young people are amazing - many thanks to all those who took part.

Welcome to this photo-based study that displays the photos, thoughts and words of young people with FASD.

My name is Miranda and I am studying at the University of Edinburgh. From May 2021 to May 2022, I have been privileged to carry out research with 8 young people across the UK as they share their views and experiences of FASD with me and as part of a group. In this SWAY presentation, we have worked together to identify photos and the key messages that the young people want to share about FASD with everyone!

Thank you to my co-researchers and FASD Hub Scotland for supporting this research. Any questions please contact me at [email protected]

View the presentation here

If you are a student/researcher working in the field of FASD, we may be able to support your work. At times, members of our community may be available to participate in your research providing the lived experience that enriches research and ensuring that its outcomes meet the needs those with FASD and their families.

If you would like FASD Hub Scotland to consider supporting you in your research, approval must be gained from the Adoption UK Senior Leadership Team. You are required to provide a written confirmation of ethics approval from your university, and also a research outline document. These will then be reviewed by Adoption UK and you will be informed of the outcome. Research requests should be emailed to [email protected]