FASD Assessment & Diagnosis 

Seeking an FASD assessment can feel daunting, partly because of the nature of the process and partly because of the implications a diagnosis may have for you, your family and your child. There can be significant wait times before and during an assessment, and it is not uncommon for parents and carers to feel frustrated by the process. But remember.... 

• You have found your tribe! We have a thriving community of parents and carers who support, empower and encourage each other. We would encourage you to link in with this community by joining our Peer Support Group HERE
• We’re here to support you! You can call the advice line or email us at any time if you need a listening ear or advice on what to do next. 
• Knowledge is power! The resources listed below contain lots of helpful information to equip you on your journey and arm yourself with the knowledge you need. 

For those professionals involved in the diagnosis of FASD you can find information and training relevant to you by visiting the Fetal Alcohol Advisory Support & Training (FAAST) Team’s website - https://www.faast.ed.ac.uk/

SIGN 156: website This website gives an introduction to the SIGN 156 (Children and young people exposed prenatally to alcohol) Guidelines and links to further resources

SIGN 156 Full Guideline  Clinical guidance for those involved in the FASD diagnostic pathway.

SIGN FASD Parent and Carer Handbook  A must-have resource for families seeking an FASD diagnosis, giving information on who and what the assessment involves.

Children’s Neurodevelopmental Pathway – Practice Framework  This document set out the measure used in FASD assessment, alongside a number of other neurodevelopmental conditions such as ADHD and Autism.

FASD Hub also have a number of factsheets on diagnosis – you can find them here.