FASD Factsheets Please find below our useful Factsheets covering difference aspects of FASD Expand These resources will be added to regularly the coming week, please check back for updates, if you can’t find what you are looking for here please feel free to call the helpline and speak to one of the FASD Advisors. *Updated What is FASD? FASD Support & Resources How to seek a diagnosis Benefits and Funding
Further Reading FASD Conference, May 2018 - Edinburgh Expand Seeking a brighter future for our children – Diagnostic challenges and implications for support On 11 May 2018 Adoption UK Scotland facilitated a one day conference focused around fetal alcohol spectrum disorder (FASD). The key note speaker was Dr Raja Mukherjee from the National FASD Clinic in Surrey. He was joined on the main stage by Dr Sarah Brown, paediatric consultant from Ayrshire and Arran who now leads the NSH Ayrshire and Arran Fetal Alcohol Advisory & Support Team; Lee Harvey-Heath, founder of FASD Devon and Cornwall and chair of the National FASD Advisory Committee (UK) who discusses his experiences growing up with undiagnosed FASD and gives insights into the kinds of challenges he faces as an adult with FASD; Dr Chris Steer and Dr Patricia Jackson who spoke about the development of diagnosis pathway. The day was chaired by Professor Moria Plant. Further information about the conference, access to speakers slides and workshop information a can be accessed here. Following the conference a full report was produced – Diagnostic challenges and recommendations for the future - click here to view and download
Information and resources List of useful materials Expand Making sense of Fetal Alcohol Spectrum Disorder, guide for parents and carers by NHS AYRSHIRE and Arran Fetal Alcohol Advisory & Support Team –https://www.nhsaaa.net/media/5702/fasd-info-for-parents-carers-online.pdf Making sense of Fetal Alcohol Spectrum Disorder Summary Guide by NHS AYRSHIRE and Arran Fetal Alcohol Advisory & Support Team –https://www.nhsaaa.net/media/7926/understanding-fasd-a5-summary-guide-aug-19-print.pdf Blog post -FASD Support & Resources by NHS AYRSHIRE and Arran Fetal Alcohol Advisory & Support Team - https://www.nhsaaa.net/media/7951/fasd-supports-and-resources-blog.pdf Teaching a student with FASD by NOFAS-UK –http://www.nofas-uk.org/TeachingAStudentWithFASD_FIN%20REV.pdf Supporting students with FASD by NOFAS-UK –http://www.nofas-uk.org/WP/wp-content/uploads/2014/08/NOFASUK_ResourcesNo3_Education-1.pdf How to explain an FASD diagnosis to your child by CanFASD, Canada FASD Research Network - https://canfasd.ca/wp-content/uploads/sites/35/2019/08/How-to-Explain-an-FASD-Diagnosis-to-your-Child.pdf So you have been diagnosed with FASD, now what? Handbook of strategies for youth and young adults, FASD Network - http://www.fasdnetwork.org/uploads/9/5/1/1/9511748/you_have_been_diagnosed_with_fasd.pdf FASD - A booklet for parents, carers and families of children and young people exposed to alcohol during pregnancy: https://www.sign.ac.uk/assets/pat156_fasd.pdf Understanding Fetal Alcohol Spectrum Disorder (FASD): What Educators need to know https://www.nhsaaa.net/media/8391/fasd_whateducatorsneedtoknow.pdf
List of websites Further websites with useful resources and FASD information Expand NHS AYRSHIRE and Arran Fetal Alcohol Advisory & Support Team - https://www.nhsaaa.net/services-a-to-z/fetal-alcohol-spectrum-disorder-fasd/ NoFAS-UK - http://www.nofas-uk.org/ FASD Network - http://www.fasdnetwork.org/ FASD UK Alliance - https://fasd-uk.net/ CanFASD - https://canfasd.ca/ FASD Hub Australia - https://www.fasdhub.org.au/ FASD Forever, Jeff Noble - http://fasdforever.com/ http://fasdmanitoba.com/ https://www.fasdcymru.org/ https://endpae.ie/
Podcasts List of listening resources with further FASD information Expand Listen to the Adoption and Fostering Podcast discussing the Scotland FASD Conference - https://www.podbean.com/media/player/2ye5n-919004?from=yiiadmin%27%20data-link=%27https://www.podbean.com/media/player/2ye5n-919004?from=yiiadmin%27%20height=%27100%27%20width=%27100%25%27%20frameborder=%270%27%20scrolling=%27no Listen to Dr’s Sarah Brown and Jennifer Shields from NHS Aryshire and Arran Fetal Alcohol Advisory & Support Team - https://www.acamh.org/blog/fasd-podcast/ Listen to Dr Jennifer Shields, FASD prevalance and diagnosis in Scotland from NHS Aryshire and Arran Fetal Alcohol Advisory & Support Team - https://www.youtube.com/watch?v=kk53aZ00MPA&index=2&list=PLzuTYNEZWHB71bNaAuRnIG33nLsJr8grL Thinking about Fetal Alcohol Spectrum Disorders, blog by Dr Christopher Steer, Scottish Government Professional Advisor – an account of FASD action in Scotland. https://blogs.gov.scot/child-maternal-health/2019/09/09/thinking-about-fetal-alcohol-spectrum-disorders/ The Adoption and Fostering Podcast - Adoption UK Scotland’s FASD Hub - https://adoptionandfostering.podbean.com/e/podcast-special-adoption-uk-scotlands-fasd-hub/