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Piedro boots?

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Hi everyone,

My little one had some known health issues but within 24 hours of intros I had identified many more I'd not been told about and within a few days of coming home even more. Fortunately I'm able to deal with them currently although I am worried for the future! I've certainly taken on much more than I intended as I think we all end up doing. That said my little one is thriving and the delays far less than they were thanks to my intensive input. I am however finding as expected it all requires a battle!!!

The most recent is piedro boots, it took the physio 3 weeks to write to gp to prescribe and they took a week to do it and I've learnt today a week to post the referral to orthotics. Orthotics can't offer an appt until April ( ?!) andsay the boots will be 6-8 weeks minimum after that !! (Off the peg not special fit)

I've looked to buy but the price is £££££ ! I can't find tiny pre owned ones either - I don't think my little one should fact to wait 7 months for boots they need at age 17 months!!


Does anyone have any advice or words of wisdom please?

Is there another brand that is cheaper?

Any groups that sell second hand just to make do for. He - so many non walking children have them they often are like new.


Thank you Smile


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Munchkin came to us wearing these boots. They were a nightmare. Are you pre adoption order? I ask as maybe if your LO is still a LAC they might hurry it along. Could you explore a good quality shoe from Clark's with plenty of support in the mean time? J wouldn't buy second hand as it may damage the feet more.


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Hi, little one is pre AO - another long story there! They've only just started walking after a fashion but I've bought Clarks shoes . Cant see my LA offering a penny- despite my little ones physical needs and the fact they've likely also got the one thing I didn't want they flatly refuse to offer any financial or practical support or put anything in writing in terms of future support ! This is another story that has caused me a lot of stress too Sad

Thanks for trying to help.


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And there is no way of speeding things up- there's a waiting list and all the children obviously need them asap.

I've said I will take s cancellation etc - seems crazy when physio says we literally just need to collect a pair in little ones shoe size!


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Hi, just to say that Piedro boots are exactly that - they are just boots. They are obviously stronger and more reinforced so offer more support but they aren't a miracle cure so waiting won't make a huge difference. Kickers boots are are good substitute, as are Nike boots (if you can find any!) but the wait really won't make a world of difference. I would offer you our old ones but they are so trashed that a pair of new Velcro boots from Asda would actually probably offer more support!


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My son came to my wearing piedro boots. He has numerous health problems but getting an appointment with Orthotics has always been the most challenging - although it seems like it should be the simplest. Last time I spoke to them I cried (not deliberately) and an appointment was conjured up the following week!


How's about contacting the LA's medical advisor? I wonder if they could pull any strings? Or is he under the care of any other paediatrician or have a portage worker? Is your health visitor supportive?


In the meantime I would go for Kickers as Chickenlegs suggested or other boots/shoes with good ankle support.


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I am having a similar fight with our local wheelchair service that has recently been outsourced. I rang in early sept to ask for a wheelchair revew and am still waiting . My son has a moulded wheelchair which is custom made and they estimate an appoint is likely in march ! Then it has to be made so another 8 to 10 weeks wait.

I have rung numerous times and threatened a complaint etc but no joy. I am afraid it is like banging your head on a wall ! Esp seems to be bad now privatised as before you got an appoint in a few weeks. I will need to ring as soon as i get new chair to ask for a review if it is going to take the best part of a year to be seen. I dont know what they expect us to do when his wheelchair gets too small as he cant sit up and therefore needs supportive seating.

I am going to be kicking up a massive stink if no appoint date by end of jan .Unfortunately as you know mummydream it is always a battle to get what you need and i would be insisting on support written into the adop order before i would proceed.


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I've tried pulling strings from contacts but I know every parent waiting will view their child as top priority and won't want to wait.

I've found some new piedro boots for £60 on Amazon but will look at kickers as recommended - thank you!

I'm hoping that the low tone and hypermobile joints will be helped by boots but the weight worries me - i am going to ring up orthotics every week - the lady seems very nice and it's not her fault demand is greater than they can support but will complain officially if get nowhere - it's a shame if it comes to that but we all know those who shout loudest and longest get action first Smile


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So both our kids have needed piedro boots. Our daughter has hypermobility and like you there was a long waiting list for piedros. We went out and bought a pair of very firm start right ankle boots. Aged 20 months, within a week of having the boots she was walking. When she eventually got the piedros I would say they weren’t any better.


Our son has global developmental delay, hypotonia and severe hypermobility. He too was referred for boots. We tried the same trick of the firm start right boots but he couldn’t even stand in them. In the end I took him to Russell and Brom and tried on almost ever pair of shoes in his size until we found one he could stand in. They were canvas ankle boots.


When his piedros finally arrived they were utterly useless. Due to his low tone as well as hypermobility (and probably done proprioception issues thrown in too) he found them too heavy.


He eventually walked in soft but supportive timberlands aged 2.5 years.


They are all different but piedro’s certainly weren’t the be all and end all. Id take little one on a quiet day to a good quality shoe shop and see what works best for them. Bribed with a bag of Pom bears in our case!!


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Brilliant advice thank you everyone!

Little one is hyper anxious and won't walk outside the home, literally flops on the floor, won't weightbear which made shoe fitting interesting last time ! We shall try again for boots then until I've annoyed the orthotics staff so much they expedite our appointment ha ha


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my youngest wore over the counter ankle boots until he was 4 becoz I lived abroad and there was no option for anything else. suited him fine. he did get some orthotic inserts made and given to him but that was privately and cost a fortune! when we returned to the UK he was referred via his special school for piedro boots and they arrived fairly fast (20 years ago now tho!) but as soon as he went to mainstream I got the line that they only offered the otrthotic service within special schools, so miraculous cure then!! he survived in OTC boots until he no longer needed boots. more recently a child I looked after wore out the piedro boots and again as OP weeks wait for the orthotics appointment so I ordered several pairs of kickers that arrived within 24 hours and I was able to try them on and send back those unwanted, and a 5th the cost of piedro boots! they were preferred too becoz there was a choice of colour.

bottom line is that orthotics is one of those postcode lottery services that works well in some areas and not in others, peidro boots are great for children who need to have hand made to measure boots but most children with special needs who need a boot need a boot and not a made to measure boot so as long as the boot is supportive of the ankle and fits any orthotics or AFO's the child has then a boot is a boot is a boot. kickers are the best I've found for support. more problematic I've found is summer footwear when boots look out of place but the need for support remains the same.


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Hi MummyDream,


Thankfully this is the one area we've never had a problem with. He came to us in Feb 2016 with Piedro's, the physio here came in the March and said they were 2/3 sizes too small! He got an appointment for the May and picked them up end of June. He had a review in the Nov and they were ready for him in the Dec. Last year was very similar and most recently we had an appointment for him on the 15th Dec but easily brought it forward 2wks early and picked them up on the 13th Dec! Quickest ever! So you are unlucky in your area Sad Our son really needs these for the support as his feet are like jelly so maybe the service for children like this are classed as urgent, I have no idea. We also use a pair of boots from Clarkes, with good ankle support, but mainly for in the house as Piedro's can be quite restrictive and he doesn't walk, he bunny hops. I hope you manage to get somewhere soon xx


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Hi Wizzywoo,


Hope you are well?


Wheelchair services...eeek!! I think it is the same everywhere.


Get on to your local MP, that's what we did and it worked.


xxxxx


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Hi wordsearch nice to hear from you. I might seriously have to take your suggestion and do just that! It is so wearing doing battle all the time ( as you well know following your epic battle of the beds ! ) but I cant really complain as it is relatively plain sailing here at the moment. Though no doubt i have just jinxed it !!

Hope you had a nice christmas and that you are all happy and healthy in the year ahead. Best wishes x


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Ah, Wizzywoo, don't ask Sad Had a terrible time. Almost lost our little man in Nov, Now has a diagnosis of epilepsy xx


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Oh no so sorry to hear that. It is so scary at times ! ! I have lots of experience with epilepsy thanks to our youngest who has a rare and life threatening form. I have been in hospital this week every night getting him sorted on a bipap machine as he is stopping breathing all the time when asleep. This is the first night home and it has been a nightmare with alarms going every few mins. Another night of no sleep hence the ridiculous time of this post !

Anyway dont want to highjack peoples posts with private conversations but ( if i can fathom it out ) you could always pm me. I think you did before but message didnt come through and was blank. Though it may have been me doing it wrong. Ha ha ! But I really hope things settle down for you and that you have a lull to recharge your energies.

Anyway i had better go as blasted alarm going again ! Take care x


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P s wordsearch just reread my post above and it makes it sound like it is all about me ! Sorry for that but what i meant was that i have experiece like yours with complex kids and i am always available to listen to a rant or offer any advice as i am sure we could support one another through the touh bits.

Anway no pressure of course but here if you want to chat . Xxx


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