test_contentimg

Mild cerebral palsy with sensory processing difficulties and vision disturbances

Report content

Son aged 10 adopted at 2 years after neglect. Attends mainstream school and has for a number of years complained of blurry print (not dyslexic) and odd objects/patterns appearing in vision. Eye health is good after hospital check who think some of his experiences are ocular migraine. I can go along with this up to a point. A recent specialised optician test has shown focus in the eye "switches on and off" and further tests are going to be done to decide best treatment. I now feel it has something to do with his sensory processing. This was diagnosed whilst being seen by CAMHS a few years ago and it was said to be as a result of early years neglect. Does anyone have any experience of this or can suggest any other condition it is like? My son is not ASD.


up
5 users have supported this.

Our DS has mild cerebral palsy but his doctor made sure his eyes were checked at the hospital early on and annual checks afterwards as cerebral palsy often has associated eye problems such as Cortical) Visual Impairment. I would request a specialist eye hospital such as Moorfields take a look.


It is unlikely to be neglect. I saw a child on Link Maker that claimed the sight issues were neglect and discussed this with an eye specialist. She said it was highly unlikely neglect would cause any sight problems and more related to untreated eye conditions or other problems such as poor prenatal care, non accidental injury etc


up
12 users have supported this.

A very good Paediatric ophthalmic surgeon consultant at Moorfields NHS or Portland Private is Ms Adams. Has knowledge of eye issues related to poor in utero exposures, sensory etc.


up
4 users have supported this.

I would second trying to go to s specialist eye hospital if you can. Mild CP can cause vision issues I am aware but it may be if it is truly an on/off focus switching that it could be related to sensory processing. Best thing is to get a referral through to a good specialist - one with knowledge of what poor in-utero or early life trauma can bring


up
4 users have supported this.

Thank you all for your replies


up
9 users have supported this.

Hello, new to this forum but what you describing seems to fit what my daughter is presenting with but she's only 4 ... how young did you notice things frustrating your 10 year please, old pea pod ? Something is frustrating my daughter, and the on off focus struck a cord when I read your account, she was late getting her eyes to look where we asked and now often confuses things she has previously seen and explained clearly - a right sided weakness has meant we have had to work on limbs but I do wonder about her brain and processing on that side might need some help too although she is under an eye hospital they can not really pin point what her difficulty is. Thank you for sharing your story was being to think It's all in my mind as teachers keep telling me she is keeping up fine.


up
7 users have supported this.

Hello Shrek and Fiona,I have always considered something was wrong and when he started year 1 on day 2 he changed big style. He hates work and I suppose it is down to all his difficulties. At first I thought he might be dyslexic but school were sure he wasn't and despite him either being last to finish his work or not managing to finish it school said nothing was wrong. It took two years to persuade the paediatrician something was wrong and he was referred to CAMHS. They "helpfully" told me he was a "mixed bag" due to adoption and his mild cerebral palsy but did diagnose sensory processing disorder but no real help given for him. They basically told me I was aware of his needs and keep going. Around this time my son was opening up to me a lot more and explained about things he sees on and off, print blurring and coming back into focus and some weird vision disturbances that last a few minutes, of varying degrees of severity, sometimes he got a headache. The disturbances stop him doing whatever he is doing. At first the paediatrician told me it was occular migraine and to rule out other things she would refer him for a EEG. He had already seen one optician who said his eyes were fine and prescribed very weak glasses to shut me up. (He actually finds them a" tiny" bit of help). He was also referred to eye specialist at the hospital who said he had good eye health. He saw a second optician with a view to looking at colour overlays which son has decided are no help at all. The second optician told me son focuses on and off and said if he was interested in something he'd focus better. Son was up set at this big style. Son told me he cannot keep his focus. When I had seen paediatrician I had given her a detailed description of the the things seen by son with a diary of sorts. When the EEG was carried out son had no episodes so I expected nothing however the EEG picked up abnormal electrical activity in the area of the original bleed on brain and so concluded because of the information provided by me the results suggested focal epilepsy effecting vision which is apparently rare. It seems he is not bad enough for treatment and i am now at a loss as to what I can do. I am still keeping a record because it seems unless it gets worse nothing is going to happen. School now accepts he suffers from time to time but haven't confirmed it effects his work. He may not be bottom of the class but he is definitely not reaching his full potential. Events move too quickly in the classroom for him. For along time I thought he must be kidding me as I could find no useful information. We are shortly due to be invited back to the second optician so I may go to him (he is out of our area) and challenge him to solve sons blurred print problem. I do think sensory processing plays a part he always has very dilated pupils. Son always does exercises for his left side and he just cannot crack arms and legs together for swimming. On learning spellings, times tables etc the number of times son forgets something he has known for weeks I have lost count off. He only forgets for a short time. I would like to find somewhere to test this because I do feel it is information processing and must effect learning. I'm afraid I am proper fed up with it all and I just know how you feel and I wish I could say it gets better. Please let me know if you find out about anything else.


up
5 users have supported this.