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Assessment & Personal Budget

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LA Assessment & Personal Budget


Hello anyone encountered what we are, and if so any suggestions other than a Solicitors letter? Asked LA under their duties, to access a Personal Budget. Not caring out, fund cutting we think! Instead they have sent us leaflets about what is on in our area for services for children with disabilities!


Our daughter now 12, commenced a specialist school in September, right move! Our Authority used to have an Aiming High Grant from Short Breaks, used it for equine and totally cut! What we want to do is access the Personal Budget to pay a TA from school, so she can join Guides. She did very well at Brownies. She will not agree to me supporting her, which we totally understand. Tried writing to our Councillor, contacted Contact a Family for advice. A letter to the Director, they have a legal responsibility. Anyone encountered this?


Any advice greatly appreciated.


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Hi. As someone with two children with special needs I sympathise. But I am not sure that you are going to get a personal budget to employ someone to take your daughter to guides. This kind of support is very hard to obtain. Within local authorities they have thresholds for accessing different types of support. My daughters never got personal budgets - basically the kids with personal budgets were the ones with severe learning disabilities and such like. As a broad rule of thumb, they couldn't do anything unaided, would go to the schools for children with profound and severe difficulties, would mostly be incontinent, non-mobile.....


The Gov did give Local Authorities Aiming High money as a specific initiative to reach a wider audience but that money is long gone.


The LA is doing all it needs to by directing you to its 'local offer' which outlines all the services available for young people with special educational needs in your area.


I know this isn't what you want to hear, but it is the reality.


My daughter is now 19 and has received a personal budget from adult services for me to employ someone to take her out. But she never qualified for this under children's services AND she has epilepsy as well as a mld and autism.


Basically, if your daughter's special needs don't meet the LA threshold, you won't qualify.


My daughter couldn't attend lots of clubs because I knew she wouldn't cope. She didn't go to Guides for that very reason. I sent her to special needs clubs where she could cope instead.


The other option is to see if you can find a befriender who would take your daughter. Sometimes young people would like to volunteer for whatever reason - even if just to look good on their CV or achieve their Duke of Edinburgh award. You could try a local secondary school and see if anyone is interested.


Or you could just pay someone - try asking on Streetlife, which is set up on location, so you could ask for someone local and just pay them for the two or three hours a week.


I hope you are claiming DLA - this could help to fund it.


All the best.


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Have you asked Guides if they know anyone? Or an older girl in Senior Section might help. My dd is now in senior section and she and another girl help at the Brownie group. Dd does really well in this scenario, although has had her own issues. I could see her supporting someone younger and vulnerable at Guides.


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Have asked, and they are struggling with not enough leaders. Will push again, may be the only option.


Thanks


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I think Flosskirk is probably right. Budgets are under so much pressure now. Something like ths wouldnt be seen as an essential. Im not sure what you think their legal responsibility is in this instance though. Are you getting DLA? In the absence of OT support I used my sons DLA to pay a personal trainer for him.


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I always think prospective adopters should do this kind of thing - excellent prep! Don't know if you can make contact with any? Or what about teenagers who do babysitting - someone might consider something like this, especially if they want a career with children. You could try your local FE college if they have courses in childcare or social care. Course, you'd probably have to pay but it would be cheaper than paying for an adult TA.


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That's a really good idea, not sure about the adopters as our daughter does not do change, new people well. But with a few intros with a college student it just may work.


When its you who is effected you don't think staright sometimes.


Thanks for all the good suggestions.


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Have you tried the clubs for SEN kids? Their staff are usually well trained. I know you say the budgets have been cut but I think you will find some run by the LA LD team (or similar) - they have them here and cover a variety of ages including adult. Also if you are particularly interested in guides - you could visit different troupes and you may find suitable understanding leaders / helpers - we used one which had opened very recently so had very few kids and were very open and understanding - my daughter and her friend both went there (both attended special school) and they were technically over the age - so maybe look at that flexibility too - maybe even a brownie pack which she could still attend? It was near where we lived so we could have popped round if there had been a problem


I would try visiting lots of different clubs / groups / classes and see what they have to offer first maybe


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Thanks Safia - we had to leave Brownies, know flexibility due to their lengthy waiting list. I have e mailed Guides now, and asked if there are any other troops.


Will keep trying.


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